Survey on post-natal management of children with an antenatally diagnosed isolated right or double aortic arch
Hope you are well, it has been a challenging few months. This message is not about COVID-19.
You may be aware that in 2015 NHS England introduced an additional view (the three-vessel and tracheal view) to the second trimester anomaly scan to help improve antenatal detection of major congenital heart disease. This view has also detected fetuses with isolated right or double aortic arch - some of whom can develop symptoms of a vascular ring. Currently we suspect there is variation in investigation, management and treatment of baby's with an antenatally diagnosed isolated right aortic arch within the United Kingdom; it is not clear how to manage these patients.
The National Fetal Cardiology Working Group (NFCWG) are keen to investigate incidence of isolated right aortic arch within the population of the United Kingdom and assess outcomes of baby's with an antenatal diagnosis to improve our understanding of this lesion and direct future management. We are working together on the study and the BCCA has helped to support the work.
will help us understand what is currently happening and help direct our work.
We have already circulated a survey about prenatal management, but this survey concentrates upon postnatal management. Please complete it and encourage others too! Your input would be hugely appreciated. We intend to report our results of the survey and the whole project back to the BCCA and as publications.
If there are any concerns please let us know. Your input is greatly appreciated.